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Sorry for the lack of updates. I spend all the time I can with Jay. Jay had the breathing tube removed Sunday and was so happy on the euphoric drug

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Old 03-27-2015, 11:03 AM   #1 (permalink)
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Sorry for the lack of updates. I spend all the time I can with Jay.

Jay had the breathing tube removed Sunday and was so happy on the euphoric drug left over for 24 hours. But at 4AM she called to ask when I was returning. I am there every day at 5PM. She called again at 5:30AM. Where am I? She has wanted to go home ever since. She does not know where she is or why she is there regardless of how many times it is said. Her short term memory is effected.

When I won't take her home she hates me, and I should leave, and then she calls me at home to tell me she loves me. This is hard on me. It must be like telling your child "NO".

She is a candidate for acute rehabilitation which is good. This would mean an additional 3 weeks in another hospital. 3 firms are competing for her business and I will choose the best one. The reading of this material would always be Jays job to read.

Jay left intensive care for half a day but was returned after a CT scan showed a problem with spamming blood vessels. This required raising of her blood pressure. If we averaged our two BP's together, I'm sure it would need lowering. :nod:

Thanks for all the flowers. They keep trying to get me to take them home so I can enjoy them. I refuse and tell the nurses to enjoy them until she gets out of ICU*, hopefully today. The nurses say it is like a jungle in the lounge. Thank you again. I have some lovely support in this world.

Last night after 10PM she called me and we spoke for a whole hour. I am not a therapist but I tried to get her to think. Talking about her last days out and about. She remembered falling down at her house and I told her this is connected to being in the hospital now. Then I mentioned she fell at my shop off a chair. She then addd she fell again at the door. HOORAY. this is correct. Jay has a recovery ahead but my non expert opinion is that she can, and will come back.

*No flowers in ICU.
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Old 03-27-2015, 11:08 AM   #2 (permalink)
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Originally Posted by Mt Tam I am View Post
Sorry for the lack of updates. I spend all the time I can with Jay.

Jay had the breathing tube removed Sunday and was so happy on the euphoric drug left over for 24 hours. But at 4AM she called to ask when I was returning. I am there every day at 5PM. She called again at 5:30AM. Where am I? She has wanted to go home ever since. She does not know where she is or why she is there regardless of how many times it is said. Her short term memory is effected.

When I won't take her home she hates me, and I should leave, and then she calls me at home to tell me she loves me. This is hard on me. It must be like telling your child "NO".

She is a candidate for acute rehabilitation which is good. This would mean an additional 3 weeks in another hospital. 3 firms are competing for her business and I will choose the best one. The reading of this material would always be Jays job to read.

Jay left intensive care for half a day but was returned after a CT scan showed a problem with spamming blood vessels. This required raising of her blood pressure. If we averaged our two BP's together, I'm sure it would need lowering. :nod:

Thanks for all the flowers. They keep trying to get me to take them home so I can enjoy them. I refuse and tell the nurses to enjoy them until she gets out of ICU*, hopefully today. The nurses say it is like a jungle in the lounge. Thank you again. I have some lovely support in this world.

Last night after 10PM she called me and we spoke for a whole hour. I am not a therapist but I tried to get her to think. Talking about her last days out and about. She remembered falling down at her house and I told her this is connected to being in the hospital now. Then I mentioned she fell at my shop off a chair. She then addd she fell again at the door. HOORAY. this is correct. Jay has a recovery ahead but my non expert opinion is that she can, and will come back.

*No flowers in ICU.
Hang in there, man. I am free today if you want to talk.
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Old 03-27-2015, 02:45 PM   #3 (permalink)
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Carter, Jay has a long road in front of her. She will need your susport and understanding. She will have good days and bad days. Don't show her your downside. Watch the tone of your voice. Always keep a smile on your face. You have to be her cheerleader. She will pick up on the little things you do. It's going to be tough. But the end result will be well worth it. This is what I had to do when my first wife went through cancer. Hang in there buddy, we all, are behind you. If you need to talk, pm me your number and we'll go from there.
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Old 03-27-2015, 05:00 PM   #4 (permalink)
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...Jay has a recovery ahead but my non expert opinion is that she can, and will come back.
That's it right there. She can and she will come back. So glad that you're there for her. All in all, when you and Jay get through this, you'll be closer and stronger, both as individuals and as a couple. Again, keep your chin up and a smile on your face.

Thanks so much for the update. Y'all have been in my daily prayers.
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Old 03-29-2015, 08:45 PM   #5 (permalink)
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Jay left the ICU for 12 hours then has returned since. She is out of the woods regarding death. Now it is a brain injury that is getting better every day, with miles left to go.

I am exhausted myself. I finally got to bed at 9 PM instead of midnight to 2 AM. I fell asleep to Star Trek, and Jays mom called for an update. Within an hour Jay called because she couldn't wait till her 8am wake up call to me. She can tell time again and I gave her the wake up call job. I slept till the 7am wake up call because she couldn't wait any longer to speak with me. Cool beans, except I could have used that hour.

She gets agitated about being trapped at the hospital and wants to leave, who wouldn't. The nurses recognize I am the only one who can calm her down so they call me and ask me to talk her down. It is wonderful to help and I was asked if I am a caregiver as I seem so comfortable handling fluids and unthreading her seemingly endless tubing. I laughed and told her I am a coin dealer. Whatever I am doing is just common sense. I don't dispense drugs or technical things but giving her full support as she walks or making sure the chair is in place before she sits down etc. This is not the brain surgery portion.

We are going to get through this.
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Old 03-29-2015, 08:57 PM   #6 (permalink)
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We are going to get through this.
Yes. Yes y'all will. So glad that things are getting incrementally better for the both of you.

Please keep us updated when time allows. I know sleep is scarce and at a premium. Take care of yourself, Carter, and hang in there.
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Old 04-04-2015, 11:37 AM   #7 (permalink)
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Great news :

After 2 weeks in intensive care, ICU, Jay is medically stable. This means she can survive with out being plugged in to the wall. Just electronically operated drips but no more. Her balance is much better and she is heading into 3 weeks of hospital rehabilitation today.

She had a small seizure that left her super mellow like sedation. They upped her dose to prevent this. This delayed her departure one day.

Bad news:

They determined Jay had a cancerous tumor. She will start radiation in about a month. The only good news really is that Jay does not understand or remember what the doctor said so she is unworried. The radiation will rattle her brain a little bit more which just kills me. We have worked so hard to get her memories back and reason better.

Onward.
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Old 04-04-2015, 02:45 PM   #8 (permalink)
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Originally Posted by Mt Tam I am View Post
Great news :

After 2 weeks in intensive care, ICU, Jay is medically stable. This means she can survive with out being plugged in to the wall. Just electronically operated drips but no more. Her balance is much better and she is heading into 3 weeks of hospital rehabilitation today.

She had a small seizure that left her super mellow like sedation. They upped her dose to prevent this. This delayed her departure one day.

Bad news:

They determined Jay had a cancerous tumor. She will start radiation in about a month. The only good news really is that Jay does not understand or remember what the doctor said so she is unworried. The radiation will rattle her brain a little bit more which just kills me. We have worked so hard to get her memories back and reason better.

Onward.
Onward, indeed! Thanks for the update, Carter, and so glad to learn that Jay is stable and improving. I suppose the silver lining in this experience is that now it is known that the tumor was cancerous so that it can be treated appropriately with radiation moving forward.

You and Jay continue to be part of my daily prayers. Hang in there.
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Old 04-04-2015, 04:28 PM   #9 (permalink)
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Yep, hang in there buddy.

Don't forget to take care of yourself at this time. Don't make the mistake I made. Drove myself into the ground. Took me awhile to recover.
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Old 04-04-2015, 10:03 PM   #10 (permalink)
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Quote:
Originally Posted by Mt Tam I am View Post
Great news :

After 2 weeks in intensive care, ICU, Jay is medically stable. This means she can survive with out being plugged in to the wall. Just electronically operated drips but no more. Her balance is much better and she is heading into 3 weeks of hospital rehabilitation today.

She had a small seizure that left her super mellow like sedation. They upped her dose to prevent this. This delayed her departure one day.

Bad news:

They determined Jay had a cancerous tumor. She will start radiation in about a month. The only good news really is that Jay does not understand or remember what the doctor said so she is unworried. The radiation will rattle her brain a little bit more which just kills me. We have worked so hard to get her memories back and reason better.

Onward.
Great news.
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Old 04-05-2015, 08:00 AM   #11 (permalink)
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Quote:
Originally Posted by Mt Tam I am View Post
Great news :

After 2 weeks in intensive care, ICU, Jay is medically stable. This means she can survive with out being plugged in to the wall. Just electronically operated drips but no more. Her balance is much better and she is heading into 3 weeks of hospital rehabilitation today.

She had a small seizure that left her super mellow like sedation. They upped her dose to prevent this. This delayed her departure one day.

Bad news:

They determined Jay had a cancerous tumor. She will start radiation in about a month. The only good news really is that Jay does not understand or remember what the doctor said so she is unworried. The radiation will rattle her brain a little bit more which just kills me. We have worked so hard to get her memories back and reason better.

Onward.
Hey Tam. Thx once more for the update. Good news. Then some bad.
Try to roll with it. My oldest daughter had some issues at three years old. I look back and wonder how i got through. But i did.
Somebody else mentioned taking care of you. Lots of truth there. You will be unable to take of Jay if you get down so be aware of your own health. Physical and mental. Hugs. Keep us posted. Prayer for you. And your gal.
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